Carers
- Department of Health (2010) Carers and personalisation: improving outcomes. London, Department of Health.
- Department of Health (2010) Recognised, valued and supported: next steps for the carers strategy. London, Department of Health.
- Department of Health (2008) Carers at the heart of 21st-century families and communities: A caring system on your side, a life of your own. London, Department of Health.
- Social Care Institute for Excellence (2009) Personalisation: Implications for carers. London, Social Care Institute for Excellence.
Commissioning
- Care Services Improvement Partnership (2005) Everybody’s Business, Key Messages for Commissioners. London, Care Services Improvement Partnership.
- Care Quality Commission (2010) Position statement and action plan for older people, including people living with dementia. London, Care Quality Commission. London, Care Quality Commission.
- Department of Health (2011) Common core principles for supporting people with dementia: a guide to training the social care and health workforce. London, Department of Health.
- Department of Health (2010) Putting People First: Personal budgets for older people – making it happen. London, Department of Health.
Department of Health (2007) Commissioning framework for health and well-being. London, Department of Health. - Department of Health (2005) Supporting people with long term conditions: An NHS and social care model to support local innovation and integration. London, Department of Health.
- King’s Fund (2006) Securing Good Care for Older People: Taking a long term view. London, King’s Fund.
- National Institute for Health and Clinical Excellence (2011) Dementia pathway. London, National Institute for Health and Clinical Excellence.
National Institute for Health and Clinical Excellence (2011) Technology appraisal TA217 Alzheimer’s disease – donepezil, galantamine, rivastigmine and memantine. London, National Institute for Health and Clinical Excellence. - National Institute for Health and Clinical Excellence (2010) Quality standard for dementia. London, National Institute for Health and Clinical Excellence.
- National Institute for Health and Clinical Excellence (2010) End of life care for people with dementia commissioning guide. London, National Institute for Health and Clinical Excellence.
National Institute for Health and Clinical Excellence and Social Care Institute for Excellence (2007) National Clinical Practice Guideline Number 42. Guideline on supporting people with dementia and their carers in health and social care. London, National Institute for Health and Clinical Excellence. - Social Care Institute for Excellence (2009) Personalisation: Implications for commissioners. London, Social Care Institute for Excellence.
End of life care
- Clinical Knowledge Summary service (2009) Clinical Knowledge Summary: Managing end-of-life problems. London, Clinical Knowledge Summary service.
This summary covers the principles of palliative care, and reviews the management of some common problems in palliative care. - Department of Health (2010) End of Life Care Strategy: quality markers and measures for end of life care.
The end of life care quality markers provide detailed structure and process markers and measures which will be relevant for end of life care for people with dementia. - Gold Standards Framework for end of life care
- Marie Curie Cancer Care (2009) End of Life Care for People with Dementia. London, Marie Curie Cancer Care.
This project aimed to identify the major barriers for dementia patients and their carers in accessing good quality end of life care. The research findings suggest cost effective ways of enabling improvements. - Marie Curie Palliative Care Institute (2009) The Liverpool Care Pathway (LCP) for the Dying Patient. Liverpool, Marie Curie Palliative Care Institute.
The Liverpool Care Pathway (LCP) is an integrated care pathway that is used at the bedside to drive up sustained quality of the dying in the last hours and days of life. - National Council for Palliative Care (2010) Priorities for dementia care within the end of life care strategy’s quality markers and measures for commissioners. London, National Council for Palliative Care.
This brief guide outlines some of the priorities for achieving high quality care for dementia sufferers at the end of life. - National End of Life Care Programme (2009) Planning for your future care – A guide. London, National End of Life Care Programme.
This booklet provides a simple explanation about advanced care planning and the different options open to people.
World Health Organisation (2004) Better Palliative Care for Older People. Copenhagen, World Health Organisation.
Equality and diversity
- La Fontaine, J. et al, (2007) Understanding dementia amongst people in minority ethnic and cultural groups. Journal of Advanced Nursing 60 (6), 605–614.
- Moriarty, J. (2010) The future ageing of the ethnic minority population: ethnicity and dementia.
- King’s College London. Moriarty, J. et al (2011) Black and minority people with dementia and their access to support and services. London, Social Care Institute for Excellence.
Health economics
- Alzheimer’s Disease International (2010) World Alzheimer report 2010: the global economic impact of dementia. London, Alzheimer’s Disease International.
- Alzheimer’s Disease International (2008) The prevalence of dementia worldwide. London, Alzheimer’s Disease International.
- Alzheimer’s Research Trust (2010) Dementia 2010: the economic burden of dementia and associated research funding in the United Kingdom. London, Alzheimer’s Research Trust.
- Alzheimer’s Society (2011) Support. Stay. Save: care and support of people with dementia in their own homes. London, Alzheimer’s Society.
- Alzheimer’s Society (2009) Counting the cost: caring for people with dementia on hospital wards. London, Alzheimer’s Society.
- Kings College London and London School of Economics (2007) Dementia UK. A report to the Alzheimer’s society on the prevalence and economic costs of dementia in the UK. London, Alzheimer’s Society.
- Kings Fund (2008) Paying the Price: The cost of mental health care in England to 2026. London, Kings Fund.
- National Institute for Health and Clinical Excellence and Social Care Institute for Excellence (2007) Dementia: Costing report. Implementing NICE/SCIE guidance in England. London, Social Care Institute for Excellence.
Involving people who use services
- Alzheimer’s Society (2010) My name is not Dementia. People with dementia discuss quality of life indicators. London, Alzheimer’s Society.
- Commission for Social Care Inspection (2008) See me, not just the dementia: understanding people’s experiences of living in a care home. London, Commission for Social Care Inspection.
This report looks at the experiences of people with dementia living in care homes in England, with a particular focus on whether their care offers dignity and respect.
Market development
- National Market Development Forum (2010) Developing Market Intelligence.
This paper looks as a starting point at how market intelligence can be defined and information brought together into a single Market Position Statement. - National Market Development Forum (2011) Practical Approaches to Market Shaping and Provider Development.
This briefing explores what is meant by market shaping and proposes a simple framework for understanding and planning market development for councils and their partners. - Think Local, Act Personal Partnership (2011) Shaping the market for personalisation: Diagnostic and action planning tool.
This tool was developed to help commissioners and others with a stake in shaping local markets to understand and assess their progress in delivering personalisation in adult social care.
Policy
- Department of Health (2009) Living well with dementia: the National Dementia Strategy. Joint commissioning framework for dementia. London, Department of Health.
- Department of Health (2010) Living well with dementia: A National Strategy Good. Practice Compendium – An assets approach. London, Department of Health.
- Department of Health (2010) Nothing ventured, nothing gained. Risk Guidance for people with dementia. London, Department of Health.
Department of Health (2010) Quality Outcomes for People with Dementia. Building on the work of the national dementia strategy. London, Department of Health. - Department of Health (2010) Practical approaches to improving the lives of disabled and older people through building stronger communities. London, Department of Health.
Metrics
- Alzheimer’s Society, Surrey County Council, NHS Surrey et al (2011) A Local Reporting Tool for Dementia: The Surrey development project. Surrey, Surrey County Council. This tool will capture progress with improved outcomes for people living with dementia across the life of the recently published Surrey Commissioning Strategy 2010-15. This document summaries the project to develop the tool and includes illustrative sample outcome templates.
