Admittance
- Age UK (2010) Going into hospital. London, Age UK.
Age UK factsheet which provides information about going into hospital. - Royal College of Nursing and Alzheimer’s Society (2010) This is me leaflet. London, Alzheimer’s Society.
This leaflet provides professionals with information about a person with dementia to help enhance the care and support they receive whilst in an unfamiliar environment.
Awareness
- Alzheimer’s Society (2011) Remember the person. London, Alzheimer’s Society.
The idea of Remember the person is encouraging people to be a friend to someone with dementia. It is trying to take the fear out of dementia and make people realise that people living with dementia are just people. It gives them ten simple things they can do to help a family living with dementia that will hopefully get people to support families living with dementia more. - Innovations in dementia (2011) Videos by people with dementia. Exeter, Innovations in dementia.
A series of films made by people who are living with dementia. The films show people living their lives positively, with vitality and creativity. They are about people who are still learning, and still growing. They show that dementia is life-changing, but not life-ending. - South West Dementia Partnership (2011) Dementia awareness resource pack. Bridgwater, South West Dementia Partnership.
The Dementia awareness resource pack contains a selection of quality assured awareness raising resources designed to promote living well with dementia.
Carers
- Department of Health (2008) Carers at the heart of 21st-century families and communities: A caring system on your side, a life of your own. London, Department of Health.
- Department of Health (2010) Carers and personalisation: improving outcomes. London, Department of Health.
- Department of Health (2010) Recognised, valued and supported: next steps for the carers strategy. London, Department of Health.
- Princess Royal Trust for Carers (2009) Putting People First without putting Carers Second. London, Princess Royal Trust for Carers.
This report examines the challenges local councils and health trusts face in making personalisation a reality for carers alongside those they care for. The report offers some of the high impact solutions that are already in place to meet those challenges. - Social Care Institute for Excellence (2009) Personalisation: Implications for carers. London, Social Care Institute for Excellence.
Discharge
- Association of Directors of Adult Social Services (2010) Carers as Partners in Hospital Discharge. Warwickshire, Association of Directors of Adult Social Services.
This paper came about as a result of concerns around the scope to further improve recognition and support of carers as partners within hospital discharge processes. The intention has been to explore potential for improved partnership working and better outcomes for both the carer and the patient who becomes the cared for person on discharge. - Barras, S.L. et al (2010) Discharge planning from hospital to home. Cochrane Database of Systematic Reviews 2010, Issue 1. Art. No.: CD000313. DOI: 10.1002/14651858.CD000313.pub3.
- Carers UK (2009) The voice of carers; what support is there when the person I look after is coming out of hospital?
- Department of Health (2010) Ready to go? Planning the discharge and the transfer of patients from hospital and intermediate care. London, Department of Health.
This practical resource provides practitioners and organisations with advice to support improvements in how they manage the discharge of individuals and transfer of care between settings. - Department of Health (2003) Discharge from Hospital, pathway, process and practice. London, Department of Health.
This good practice guidance updates and builds on the Hospital Discharge Workbook published in 1994. - Healthcare for London (2009) Chapter 3 General hospital care pathway, pp45-68 in Dementia Services Guide. London, Healthcare for London.
- NHS Institute for Innovation and Improvement (2008) Discharge Planning.
- Royal College of Nursing (2001) Discharge planning: day surgery. London, Royal College of Nursing.
A framework that covers physical, psychological and social aspects of patient care. It can be used to develop guidelines for patient discharge following day surgery.
Education and training
- Alzheimer’s Society training courses.
The Alzheimer’s Society have a range of training courses on offer, as well as a bespoke in house training service. - NCC Home Learning, NHS Procurement Approved training supplier.
Social Care Institute for Excellence (2009) Dementia e-learning package
End of life care
- Clinical Knowledge Summary service (2009) Clinical Knowledge Summary: Managing end-of-life problems. London, Clinical Knowledge Summary service.
This summary covers the principles of palliative care, and reviews the management of some common problems in palliative care. - Department of Health (2010) End of Life Care Strategy: quality markers and measures for end of life care.
The end of life care quality markers provide detailed structure and process markers and measures which will be relevant for end of life care for people with dementia.
Gold Standards Framework for end of life care - Marie Curie Cancer Care (2009) End of Life Care for People with Dementia. London, Marie Curie Cancer Care.
This project aimed to identify the major barriers for dementia patients and their carers in accessing good quality end of life care. The research findings suggest cost effective ways of enabling improvements. - Marie Curie Palliative Care Institute (2009) The Liverpool Care Pathway (LCP) for the Dying Patient. Liverpool, Marie Curie Palliative Care Institute.
The Liverpool Care Pathway (LCP) is an integrated care pathway that is used at the bedside to drive up sustained quality of the dying in the last hours and days of life.
National Council for Palliative Care (2010) Priorities for dementia care within the end of life care strategy’s quality markers and measures for commissioners. London, National Council for Palliative Care.
This brief guide outlines some of the priorities for achieving high quality care for dementia sufferers at the end of life. - National End of Life Care Programme (2009) Planning for your future care – A guide. London, National End of Life Care Programme.
This booklet provides a simple explanation about advanced care planning and the different options open to people.
World Health Organisation (2004) Better Palliative Care for Older People. Copenhagen, World Health Organisation.
Environment
- Alzheimer’s Society (2010) Guide to dementia care environment. London, Alzheimer’s Society.
Good practice resource for helping people with dementia to live well through improved design of the care environment. - McCloskey, R. M. (2004) Caring for Patients With Dementia in the Acute Care Environment: Progressively Lowered Stress Threshold (PLST) Model. Geriatric Nursing 25(3)
Identifying factors, which may bring about undesirable behaviours in an acute setting and strategies for prevention and control
Healthy living
- Age UK (2010) Still Hungry to be Heard. London, Age UK.
- Department of Health (2007) Nutrition Action Plan. London, Department of Health.
The Nutrition Action Plan outlines how nutritional care and hydration can be improved and suggests five key priority areas through which managers and staff working in health and social care can address this. - Mental Health Foundation (2010) 10 Ways to look after your mental health. London, Mental Health Foundation.
The Mental Health Foundation produces a range of publications, including reports, briefings and information booklets. Most of these can be downloaded free of charge from this site. - NHS Gloucestershire et al (2010) Living Well Handbook. Gloucestershire, NHS Gloucestershire.
This handbook comes complete with information that may be helpful to you both now and in the future. There is also space for you to record information that is important to you. Sharing your Living Well Handbook with people involved in your care will help ensure you receive the treatment and support that suits you best.
Liaison services
- NHS Confederation (2009) Healthy Mind, Healthy Body Briefing. London, NHS Confederation.
Good practice examples and academic evidence to help build a case for liaison psychiatry services.
Standards
- Alzheimer’s Society (2010) My Name is Not Dementia: people with dementia discuss quality of life indicators. London, Alzheimer’s Society.
- Alzheimer’s Society (2010) My Name is Not Dementia: literature review. London, Alzheimer’s Society.
Dignity in Care Campaign - NHS Confederation (2010) Acute Awareness: Improving Hospital Care for People with Dementia. London, NHS Confederation.
- South West Dementia Partnership (2010) South West Hospital Standards in Dementia Care. Bridgwater, South West Dementia Partnership.
- Royal College of Psychiatrists, Centre for Quality Improvement (2010) National Audit of Dementia (care in general hospitals): preliminary findings of the core audit. London, Royal College of Psychiatrists.
Key findings from a preliminary analysis of aggregated hospital-level data collected as part of the core audit of the National Audit of Dementia are summarised in this report. - Royal College of Psychiatrists (2005) Who cares wins. Improving the outcome for older people admitted to the general hospital: Guidelines for the development of Liaison Mental Health Services for older people. London, Royal College of Psychiatrists.
